Press Release

MyData Online 2020 Conference Session to Focus on Patient-Centric International Health Data Sharing

Madison, WI. – December 8, 2020

MyData Health, co-founded by Cubismi, Inc. and the Human Colossus Foundation will host a session at the upcoming conference by its parent organization, MyData Global Online 2020. MyData Global is based in Helsinki, Finland and is hosting its annual conference via a new virtual venue on December 10-12, 2020.

The MyData Health conference session titled, “Connecting the Dots on Health Data Sharing,” will be held on Friday, Dec.11 at 22:45 UTC / 4:45 pm CST / 5:45 pm EST US time. The session will bring together international leaders in digital trust in healthcare to discuss the premise and pathways toward a vision of patient-centric international health data sharing, with an emphasis on enabling new technologies. The session will be moderated by Dr. Moira Schieke, Founder and CEO of Cubismi, Inc.

“COVID-19 has put an emphasis on the need for the global science community to share data openly as a critical-need public health initiative,” says Dr. Schieke, Co-founder of MyData Health. “International health data sharing in a manner that protects individuals’ rights over their personal health data, however, is not so simple. It involves a deeply complex array of considerations, including technological, public policy, legal and regulatory, clinical medicine, and public health. The MyData group advocates for use of decentralized key management and semantic technologies that optimize the power of collated health data, while assuring personal controls. To build the right vision for the future, we need to build international collaborations using these emerging technologies.”

Panelists and speakers for the session include:

Hernando Giraldo, US Regional Lead Digital Development Global Clinical Operations, Boehringer Ingelheim, a world-leading, research-driven pharmaceutical company. In his current role with Boehringer Ingelheim, he drives the digital innovation across the globe as it pertains the firm’s Clinical Development value chain. Most recently, he became the steering committee member and driving force behind Boehringer work with IMI’s PharmaLedger consortium.

Linda Van Horn, is a serial entrepreneurial and health IT expert. Ms. Van Horn is theFounder of iShare Medical. iShare Medical is the trusted online platform for securing, sharing, and sending medical records among patients, providers, and payers. iShare Medical uses the Public Key Infrastructure X.509 Certificates bound to a persons’ authenticated identity to createan iShareID digital trust credential that is used throughout the US healthcare system.

Jim St. Clair, Chief Technology Officer (CTO), Dinocrates Group LLC, a Maryland-based boutique strategy and advisory firm, and the founder of the Institute for Healthcare Financial Technology. Jim is an active technology strategist helping customers in government, healthcare and other industries consider, evaluate and implement technology in Blockchain, artificial intelligence (AI), robotic process automation (RPA) and cloud technologies. Jim is also active in several industry associations, is a founding member of the Trust over IP Foundation, where he leads the Patient Identity Task Force. Jim is also a member of several standards development organizations (SDOs), to include Hl7, ISO and IEEE.

Leslie Kelly Hall, is an advocate for patients, a subject matter expert, and a Health IT champion. Committed to patient engagement, consumer empowerment, and the use of health information technology to support collaborative care, Leslie's experience as a health system Chief Information Officer and Marketing executive at Saint Alphonsus Health System gave her a platform to promote and operationalize patient access to records, patient education and shared decision making when these ideas were still nascent in the industry. Appointed to national advisory committees in both the Obama and Trump administrations, Leslie has made an impact on healthcare technology policy for patients, providers, and the data interoperability needed to co-produce health with all stakeholders; with the patient at the center.

Najib Rehman, Data Strategy Lead, FarmaTrust, a blockchain and AI services company that provides future-proof blockchain and AI based provenance systems for the pharmaceutical and healthcare sector. Najibhas worked in the pharmaceutical industry for 20 years, most of which were at Pfizer in increasingly senior roles. In recent years, he has become increasingly involved with understanding how regulation such as FMD and GDPR will increasingly impact the commercial & operational efficiency of the pharmaceutical industry to conduct business in an already highly regulated sector.

To register for the conference, visit www.online2020.mydata.org/tickets/

AboutMyData Global
MyData Global is an award-winning international nonprofit. The purpose of MyData Global is to empower individuals by improving their right to self-determination regarding their personal data. It is based on the MyData Declaration. MyData Global has nearly 90 organisation members and over 600 individual members from over 40 countries, on six continents. MyData Global facilitates the 2000+ strong MyData Global community working on the ethical use of personal data. As part of its ecosystem development work, MyData organize the MyData Conferences and in 2020 – four regional events. To learn more, visit www.mydata.org

About Cubismi
Cubismi is building a medical insights collaboration platform that combines precision visual analytics from human body big data in innovative, interactive 3D interfaces to allow doctors to deliver key actionable visualizations - anytime, anywhere. To learn more, visit www.cubismi.com

About Human Colossus Foundation
The Human Colossus Foundation supports a safe and secure data sharing economy by creating an infrastructure which can incorporate synergistic components for interoperable data usage and privacy expectations in the digital world. To learn more, visit www.humancolossus.foundation